The last few days have been okay, but not great. Ryan is still struggling to feel well in the mornings and having trouble weaning from the vent. Yesterday he did not get on his trach mask until 4:00 and today he has not been on at all. Dr. Ojo told him today to just take a break for the day and try again tomorrow. The pain in his neck is very strong when he is weaning, because he is working so hard to do his breathing. Dr. Ojo continues to reassure us that she will not take him off the list unless some thing catastrophic happens. She wants Ryan to focus on staying strong and healthy. Please continue to pray for his anxiety. I think that his anxiety is a big part of his inability to wean. It is frustrating for both of us because he knows that he can do it, but for some reason he is really struggling.

Please also pray for there to be no infections. Ryan had a fever this morning so they are checking to make sure there are no infections in any other part of his body. His fever has not been back since about 8 am, but he has had Motrin and Tylenol all day for pain so it might be under the surface.

We are both looking to some visitors this weekend and hoping that will pick up our spirits....I am sure that Lily and Wyatt will help with that :)