Here are a couple of recent pictures of the kids...they are the only two that I have taken if weeks.

Wyatt was sleeping so sweetly one night, I couldn't resist snapping a quick picture of him. I love watching my children sleep, especially after a day filled with tantrums and disobedience.

Lily loves to draw and to write her name. She did this picture up in her room and then called me up to see her self-portrait.

Life has been crazy recently. Three weeks ago I began working one day at week at our church. I am helping out in the office: printing bulletins, stuffing mailboxes, creating fliers, answering the phones, etc. It is nice to get out of the house one day a week and the kids are well taken care of by my parents. Even though it is only one day, it has taken a little adjusting. I am still babysitting two days a week, so we are quite busy.

This week is also our garage sale (tonight, tomorrow, and Friday). I have been busy organizing and pricing stuff to sell. We are getting rid of a lot of toys that Lily and Wyatt have "outgrown". It feels good to de-clutter, but it is another reminder of how fast they are growing!

A Beautiful Tribute

A week or so ago I mentioned Sarah's blog and her son, Connor. Here is a beautiful video that she made to honor Connor's life and to raise awareness about CF.

Make an on-line slide show at www.OneTrueMedia.com

A Mom's Day Giveaway

Maggie Moo's Mom is doing a giveaway for Mother's Day. Head over here to register to win a "mom" shirt for you and a friend.

We have two shirts from Maggie Moo's Mom -- so cute!

Whose Face Do You See?

Cystic Fibrosis -- I lived in ignorance for most of my life about this awful disease. I didn't know what cystic fibrosis was before 2001, I don't know that I had even heard of it before then. I had no idea that:

"Approximately 30,000 children and adults in the United States have cystic fibrosis. An additional ten million more—or about one in every 31 Americans—are carriers of the defective CF gene, but do not have the disease. CF is most common in Caucasians, but it can affect all races."

If you had asked me what the symptoms of CF were, I could not have told you that the most common are:

• Very salty-tasting skin
• Persistent coughing, at times with phlegm
• Frequent lung infections, like pneumonia or bronchitis
• Wheezing or shortness of breath
• Poor growth/weight gain in spite of a good appetite
• Frequent greasy, bulky stools or difficulty in bowel movements
• Small, fleshy growths in the nose called nasal polyps

I had no idea that my life and the lives of my children would forever be changed by this disease...

Yet, when I think of cystic fibrosis I don't see a disease, I see a face, a person. I see the face of my husband. I see the face of Lily and Wyatt's daddy. I see the face of the person that I miss each an every day because this disease does not have a cure. I see Ryan.

I hear stories and read blogs about people with cystic fibrosis. Some stories are sad, difficult, and depressing. Some stories are happy, heartfelt, and exciting. Almost all stories have something positive to share. You see the thing about cystic fibrosis is that it seems to bring out the best in people. All of the people I have know with CF are positive about life. They see the glass as half-full. They are determined. They are fighters. They are unwilling to give up until the last option has been tried. They don't want you to feel sorry for them, they want you to see them as a person who has an illness, but is not defined by the illness.


Whose face do I see when I think about cystic fibrosis? I see my husband, who fought until the very end against this disease. Whose face do you see when you think about cystic fibrosis?

Please join me in fighting this terrible disease. Please join my team, Sweeney Striders, in taking a stand against this disease that takes lives every day, but not before those lives can make a difference. My personal goal for Great Strides is $1,000. I need 10 more people who are willing to partner with me at $10 a piece to help me reach my goal.

Facts about CF listed in the post can be found here.

Enjoying Spring

Today has been beautiful! The kids went outside at 9:30 this morning and they didn't come in again until 2:00 this afternoon. I thought I would try and capture a few pictures to remind us of this beautiful day!

some pictures and a check up

Here are some recent pictures, mainly of Lily. They aren't the best pictures ever, but I felt like I hadn't put any up in a while. We were in Illinois for a few days last week to see family and friends and to celebrate Lily and Wyatt's birthday with Ryan's family. It was fun but busy trip.

Papa Steve had balloons and streamers at his house -- it was hours of entertainment!

Chairs they got from Papa Steve...they were watching either Goofy or Chip and Dale (the classic cartoon DVD's from Auntie Amanda and Uncle Nick).

On Friday, we celebrated with Grammy. We went to Woodfield Mall and ate at Rainforest Cafe for the first time -- it was not too traumatic, they just had to get used to the thunder. Lily wanted her picture taken with Grandma and the snake that hangs outside the restaurant.

Lily was happy to come home and see her Papa Les too!

Monday I took the kids in for their 4 year check-up. I am sure most people don't want to know the details of their weight and height, but I like to write it down so that I can remember it. (I wanted to compare this year to last and I didn't write it down. :( ) They both did great at the visit. They were excited to do the vision and hearing tests and get weighed and measured (HUGE improvement for Wyatt who used to scream about getting on the scale). The worst part for all of us was the 4 shots that they each had to get -- they both cried and Mommy almost did too.

Lily Grace:

Height: 37 1/2" (10%)

Weight: 27 lbs. (3%)

Vision: 20/30

Wyatt Ryan:

Height: 41" (70%)

Weight: 36 lbs. (50%)

Vision: 20/30

Please pray for this family

Please pray for Sarah and her almost 7 year old son, Connor, and the rest of her family. Connor has CF. Tomorrow is his 7th birthday. It will be his last. Please go to Sarah's blog to read their story and give her some encouragement.

Will You Give?

April is Donate Life month.

I just read a devastating fact, "Michigan ranks 42nd in the nation in the percentage of licensed drivers who have signed up to donate their organs, according to Michigan Organ Donor Registry officials."

Are you signed up?

"If you don't have a red heart on symbol on the front of your license or state ID, you are not fully registered," Pietroski (Gift of Life president) said. "And with 3,000 people in the state waiting today for a life-saving transplant, this is a matter of life or death."

For the state of Michigan, you can sign up here.

Facts of Organ Donation from Donate Life:

• Fact: Anyone can be a potential donor regardless of age, race, or medical history.
  
• Fact: All major religions in the United States support organ, eye and tissue donation and see it as the final act of love and generosity toward others.
  
• Fact: If you are sick or injured and admitted to the hospital, the number one priority is to save your life. Organ, eye and tissue donation can only be considered after you are deceased.
  
• Fact: When you are on the waiting list for an organ, what really counts is the severity of your illness, time spent waiting, blood type, and other important medical information, not your financial status or celebrity status.
  
• Fact: An open casket funeral is possible for organ, eye and tissue donors. Through the entire donation process the body is treated with care, respect and dignity.
  
• Fact: There is no cost to the donor or their family for organ or tissue donation.
  
• Fact: Signing a donor card and a driver's license with an "organ donor" designation may not satisfy your state's requirements to become a donor. Be certain to take the necessary steps to be a donor and ensure that your family understands your wishes.

Statistics on Organ Donation:

• More than 100,000 men, women and children currently need life-saving organ transplants.
• 
  Every 11 minutes another name is added to the national organ transplant waiting list.
• 
  An average of 18 people die each day from the lack of available organs for transplant.
• 
  In 2008, there were 7,984 deceased organ donors and 6,218 living organ donors resulting in 27,961 organ transplants.
• 
  In 2007, approximately 30,000 grafts were made available for transplant by eye banks within the United States.
• 
  According to research, 98% of all adults have heard about organ donation and 86% have heard of tissue donation.
• 
  90% of Americans say they support donation, but only 30% know the essential steps to take to be a donor.

Please take the time to consider this gift -- you never know who's life you will save.

two pictures to capture our weekend

Happy 4th Birthday, Wyatt Ryan and Lily Grace!

Happy Easter!

Jesus, You are Lord of All!

4 Years of Double Blessings!

Lily Grace Sweeney

April 3, 2006: 4 lbs. 3 0z.

April 3, 2010: ~ 24 lbs.

Favorite colors: pink and purple

Favorite activities: coloring, reading books, playing with you babies, playing outside, laughing with your brother.

Favorite foods and drinks: chocolate milk, juice; you don't love any specific foods, but you will eat most things.

Personality: Lily you are very independent most of the time. You love to laugh and giggle.

Things you learned to do since your last birthday: ride your big girl bike, write your name, recognize your letters and some numbers, memorize your Cubbie verses, get dressed by yourself, go potty, put on your shoes, and draw pictures of people.

Wyatt Ryan Sweeney

April 3, 2006: 4 lbs. 13 oz.

April 3, 2010: ~ 32 lbs.

Favorite colors: blue, orange, and green

Favorite activities: playing outside, laughing with your sister, driving cars, read books, and cuddle with Mommy.

Favorite food and drinks: peanut butter and jelly, tacos, chocolate milk

Personality: You are getting so brave. You are slowly becoming more independent, but you still love to be with Mommy! You love to laugh and be silly, especially with your sister.

Things you learned to do since your last birthday: ride your tricycle, go potty, memorize Cubbie verses, recognize letters and numbers, put on pants and shoes -- sometimes your shirt too.

Update: T-Shirts for CF

**Updated: I have seen the blue color that was an option and I don't care for it. I am going to go with a LIME GREEN COLOR for the shirts. **

I am having t-shirts made for my Great Strides team to wear on the day of our walk. I am also going to offer the opportunity for any one else to purchase a t-shirt with the proceeds going to support the Cystic Fibrosis Foundation.

"The mission of the Cystic Fibrosis Foundation, a nonprofit donor-supported organization, is to assure the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease."

---------------------------------

The t-shirt will be a **LIME green color and the design will be:

Front (small print to the upper left):

Sweeney Striders

Back (centered):

In Memory of
Ryan Sweeney
March 2, 1981- June 6, 2008
I have fought the good fight,
I have finished the race,
I have kept the faith.
2 Timoty 4:7

The cost of the shirts will be $10 for those who are looking to purchase one, $2 will be given to CFF. There will be a shipping cost if you do not live near me. Please let me know as soon as possible if you would like a shirt and the size you want. You can leave a comment on this post or you can find my email under my profile on the blog.